References & Recs

Photo of a dormitory from Lakeland Village. Courtesy of Washington State Archives

References

Archiving Neurodiversity. (2022, September 21). https://www.txst.edu/cssw/news-events/event-archive/2021/archiving-neurodiversity.html

Arial Photo of Lakeland Village RHC (Box 1; History and photos of staff and clients). (n.d.). [Photograph]. Washington State Archives.

Belolan, N. (2024). File/Life: We Remember Stories of Pennhurst . Institute on Disabilities, Temple University, Philadelphia, PA. The Public Historian46(1), 151–157. https://doi.org/10.1525/tph.2024.46.1.151

Brilmyer, G. (2020). Towards Sickness: Developing a Critical Disability Archival Methodology. Journal of Feminist Scholarship17(17). https://doi.org/10.23860/jfs.2020.17.03

Central State Hospital Digital Library & Archives Project. (n.d.). Retrieved January 4, 2026, from https://coloredinsaneasylums.org/

Clark, M. (1949a). Lakeland Village Transmittal Letter (Box 6; Medical Program) [Letter]. Washington State Archives.

Clark, M. (1949b). Lakeland Village Transmittal Letter (Baby Boy C) (Box 6; Medical Program) [Letter]. Washington State Archive.

Clark, M. (1949c). Lakeland Village Transmittal Letter (JG) (Box 6; Medical Program) [Letter]. Washington State Archives.

Cow Tipping Press. (n.d.). Cow Tipping Press. Retrieved January 4, 2026, from https://cowtippingpress.org

File Life Stories. (n.d.). Temple University Institute on Disabilities. Retrieved January 4, 2026, from https://disabilities.temple.edu/programs-services/media-arts-culture/file-life-stories

File/Life. (n.d.). Each + Every. https://eachevery.com/project/file-life

For the Happiness of Children (Box 1; History and photos of staff and clients). (n.d.). [Photograph]. Washington State Archives.

Friedel, M. (2024, August 16). Down Syndrome in the Archives: A Call for Reparative Description for Disability Records [Conference Session]. Society of American Archivists Annual Meeting, Chicago.

Harlan Hahn Endowment Fund Grants | Disability Studies | College of Arts and Sciences—University of Washington. (n.d.). Retrieved January 4, 2026, from https://disabilitystudies.washington.edu/HarlanHahnFund

Kunc, N. (1995). A Credo for Support (Seattle Department of Neighborhoods Involving All Neighbors Project Records, 1995-2007, Box 1). Seattle Municipal Archive.

Lawrence, S. C. (2016). Privacy and the past: Research, law, archives, ethics. Rutgers University Press.

Malcrida, C. (2006). Contested Memories: Efforts of the Powerful to Silence Former Inmates’ Histories of Life in an Institution for “Mental Defectives.” Disability & Society21, 397–410.

Mission, Vision and Objectives | Western Pennsylvania Disability History and Action Consortium. (n.d.). Retrieved January 4, 2026, from https://www.wpdhac.org/mission-vision-and-objectives/

Ponomari, B. (n.d.). Books on shelf [Graphic]. https://www.pexels.com/photo/books-on-shelves-14747971/

Rabe, B. (2016). Beach Boys. In B. Boyce (Ed.), Future Drivers from the Future (Vol. 6). Cow Tipping Press.

Report to the Washington State Legislature. (2025). Washington Secretary of State. https://www.dshs.wa.gov/sites/default/files/OSOS_WashingtonStateArchives_SSB6125_PreservationLakelandVillage_September2025.pdf

SAA Dictionary: Archival silence. (n.d.). Retrieved January 4, 2026, from https://dictionary.archivists.org/entry/archival-silence.html

SAA Dictionary: Dark archives. (n.d.). Retrieved January 4, 2026, from https://dictionary.archivists.org/entry/dark-archives.html

SAA Dictionary: Reparative description. (n.d.). Retrieved January 4, 2026, from https://dictionary.archivists.org/entry/reparative-description.html

String Bass in Dormitory (Box 1; History and photos of staff and clients). (n.d.). [Photograph]. Washington State Archives.

University of Washington Child Development and Mental Retardation Center, Rehabilitation Studies Office records—Archives West. (n.d.). Retrieved January 4, 2026, from https://archiveswest.orbiscascade.org/ark:80444/xv50735

Use of the Slur “retard” Triples on X After Elon Musk Shares the Word in a Post. (2025, January 10). https://www.montclair.edu/school-of-communication-and-media/use-of-the-slur-retard-triples-on-x-after-elon-musk-shares-the-word-in-a-post/

Welcome to the Pennhurst Memorial & Preservation Alliance. (n.d.). Retrieved January 4, 2026, from http://www.preservepennhurst.org/default.aspx

Wright, D., & Saucier, R. (2013). Madness in the Archives: Anonymity, Ethics, and Mental Health History Research. Journal of the Canadian Historical Association23(2), 65–90. https://doi.org/10.7202/1015789ar

YouTube. (n.d.-a). Retrieved January 4, 2026, from https://www.youtube.com/watch?si=BMQmNs6npgEmvztuhttps%3A%2F%2Fyoutu.be%2FkX9AmbxKzUY%3Fsi%3DBMQmNs6npgEmvztu&v=kX9AmbxKzUY&feature=youtu.be

YouTube. (n.d.-b). Retrieved January 4, 2026, from https://www.youtube.com/watch?si=BMQmNs6npgEmvztuhttps%3A%2F%2Fyoutu.be%2FkX9AmbxKzUY%3Fsi%3DBMQmNs6npgEmvztu&v=kX9AmbxKzUY&feature=youtu.be

YouTube. (n.d.-c). Retrieved January 4, 2026, from https://www.youtube.com/watch?v=PvGlmJ00IuA


Recommendations for Further Reading on Related Topics

Books and Book Sections

Barclay, J. L., & Hunt-Kennedy, S. (Eds.). (2025). Cripping the archive: Disability, history, and power. University of Illinois Press.

Brilmyer, G., & Tang, L. (Eds.). (2024). Preserving disability: Disability and the archival profession. Library Juice Press.

Cifor, M. (with EBSCOhost). (2022). Viral cultures: Activist archiving in the age of AIDS. University of Minnesota Press.

Downey, D. B. (with Conroy, J. W., Thornburgh, D., & Thornburgh, G.). (2020). Pennhurst and the Struggle for Disability Rights (1st ed). Pennsylvania State University Press.

Hylton, A. (2024). Madness: Race and insanity in a Jim Crow asylum (First edition). Legacy Lit.

Imada, A. L. (2022). An archive of skin, an archive of kin: Disability and life-making during medical incarceration. University of California Press.

Mills, M., & Sanchez, R. (Eds.). (2023). Crip Authorship: Disability as Method. NYU Press. https://www.jstor.org/stable/jj.13944206

Nielsen, K. E. (2012). A disability history of the United States. Beacon Press.

Richards, P., & Burch, S. (2018). Documents, Ethics, and the Disability Historian. In M. A. Rembis, C. J. Kudlick, & K. E. Nielsen, The Oxford handbook of disability history. Oxford university press.Schalk, S. (2022). Black disability politics. Books at JSTOR: Open Access.

Articles

Brilmyer, G. (2018). Archival assemblages: Applying disability studies’ political/relational model to archival description. Archival Science, 18(2), 95–118. https://doi.org/10.1007/s10502-018-9287-6

Brilmyer, G. (2022). “They Weren’t Necessarily Designed with Lived Experiences of Disability in Mind”: The Affect of Archival In/Accessibility and “Emotionally Expensive” Spatial Un/Belonging. Archivaria, 94(1), 120–153.

Brilmyer, G. (2023). “They Weren’t Necessarily Designed with Lived Experiences of Disability in Mind”: The Affect of Archival In/Accessibility and “Emotionally Expensive” Spatial Un/Belonging. Archivaria, 94, 120–153. https://doi.org/10.7202/1094878ar

Friedel, M. K. (2025). Down Syndrome in the Archives: Addressing Archival Description of Legacy Records Documenting Disability Histories. The American Archivist, 88(1), 125–152. https://doi.org/10.17723/2327-9702-88.1.125Karpicz, J. R., Brar, T., Brilmyer, G. M., & Denison, V. L. (2025). “I am used to being extremely patient because I’m forced to be”: The affective politics of accommodation for disabled archivists. Frontiers in Sociology, 10, 1468401. https://doi.org/10.3389/fsoc.2025.1468401


To reach out to Monica Thomas with any concerns, questions, or inquiries, please email howabouthavingaperson@gmail.com.